A World Without MS

‘n Wêreld Sonder MS

Ihlabathi Elingenayo i-MS

About Us

Multiple Sclerosis South Africa (MSSA) is the national organization supporting people affected by multiple sclerosis (MS) across South Africa. Founded by individuals who understand the everyday realities of MS, we exist to ensure that no one faces this condition alone.

As a patient-led, registered nonprofit (NPO #003-275), our work is grounded in lived experience, guided by expert medical advice, and shaped by a passionate community. We provide trusted information, peer support, advocacy, and access to resources at every stage of the MS journey.

We are a proud member of the Multiple Sclerosis International Federation (MSIF) and contribute to global efforts to improve MS care, research, and policy. Our mission is to promote dignity, connection, and equitable access to treatment and support for all.

Our Vision

A South Africa where no one affected by MS is left behind - where every person can access the care and support they need, live with dignity, and find connection, community, and purpose.

The Challenge

In South Africa, people living with multiple sclerosis face significant barriers that affect their health and quality of life.

Too many wait years for an accurate diagnosis, while symptoms are dismissed, misunderstood, or misdiagnosed. And once diagnosed, access to appropriate treatment is often limited - especially for those relying on the public health system or living in under-resourced areas.

There is a lack of awareness among healthcare professionals, gaps in referral systems, and inconsistent access to MS specialists and disease-modifying therapies. These challenges delay care, deepen health inequalities, and leave many people feeling isolated, unsupported, and invisible.

At MSSA, we are working to change this. Through advocacy, education, and collaboration, we are pushing for earlier diagnosis, better treatment access, and equal care for all - because no one should have to face MS alone or unsupported.

Umceli Mngeni

EMzantsi Afrika, abantu abaphila ne-meervoudige sklerose (MS) bajamelene nemiqobo emikhulu echaphazela impilo kunye nomgangatho wobomi babo.

Abaninzi balinda iminyaka ukufumana uxilongo oluchanekileyo, ngelixa iimpawu zabo zingahoywanga, zingaqondwa kakuhle, okanye zixilongwa gwenxa. Kwaye xa bexilongiwe, ukufikelela kunyango olufanelekileyo kudla ngokuba luncinci - ngakumbi kwabo baxhomekeke kwinkqubo yezempilo kawonke-wonke okanye abahlala kwiindawo ezingenazo izixhobo ezaneleyo.

Kukho ukungabikho kolwazi phakathi kwabasebenzi bezempilo, izikhewu kwiinkqubo zokudluliselwa, kunye nokungafani kokufikelela kwiingcali ze-MS kunye nonyango oluguqula isifo. Le miqobo ilibazisa unyango, yandisa ukungalingani kwezempilo, kwaye ishiyela abantu abaninzi beziva bedinga, bengaxhaswanga, kwaye bengabonakali.

Kwa-MSSA, sisebenza ukutshintsha oku. Ngoncedo, imfundo, kunye nentsebenziswano, sifuna uxilongo olukhawulezayo, ukufikelela kunyango olungcono, kunye nonyango olulinganayo kubo bonke - kuba akukho mntu kufuneka ajongane ne-MS yedwa okanye engenaxhaso.

Die Uitdaging

In Suid-Afrika is dit nie maklik om met meervoudige sklerose (MS) te leef nie.

Te veel mense wag jare vir antwoorde. Simptome word maklik misverstaan, verkeerd gediagnoseer, of eenvoudig afgemaak. En wanneer ’n diagnose uiteindelik kom, is dit net die begin van nog ’n lang pad - een waar toegang tot behandeling en ondersteuning vir baie mense buite bereik bly, veral in die openbare gesondheidstelsel of in afgeleë dele van die land.

Daar’s steeds groot leemtes in kennis oor MS, nie net onder gesondheidswerkers nie, maar in die breër stelsel. Mense weet nie altyd waarheen om te gaan, wie om te vra nie, of hoe om vorentoe te beweeg nie. En daardie onsekerheid kan jou laat voel jy is heeltemal op jou eie.

Maar jy is nie.

By MSSA weet ons hoe dit voel, en ons werk elke dag om iets daaraan te doen. Ons praat, deel, leer en staan op namens almal wat met MS leef. Ons glo in vroeër diagnoses, regverdiger toegang tot sorg, en in ondersteuning wat jou nie net as pasiënt sien nie, maar as mens.

Niemand behoort MS alleen of stil-stil te probeer hanteer nie. Nie in ons land nie. Nie in enige land nie.

Our Mission

To empower, support, and advocate for people affected by multiple sclerosis in South Africa by providing trusted information, peer connection, and access to care.

We raise our voices against the urgent challenges people with MS face - especially the need for earlier diagnosis, timely treatment, and equitable healthcare across all communities.

Rooted in lived experience, we are committed to building awareness, promoting dignity, and driving change for a better future with MS.

What We Do

Support & Connection
We offer a trusted support network for people living with MS in South Africa. Through peer groups, webinars, podcasts, and one-on-one check-ins, we create safe spaces for sharing, learning, and building community.

Information & Education
MSSA provides accurate, up-to-date, and locally relevant information about MS - from diagnosis to treatment and daily management. Our goal is to empower individuals to make informed choices and feel more in control of their journey.

Advocacy & Awareness
We actively advocate for earlier diagnosis, equitable access to treatment, and recognition of MS as a serious public health issue. By working with medical experts, government bodies, global partners, and industry stakeholders, we ensure the voice of people with MS is heard where it matters most.

Global Collaboration
As the national member of the Multiple Sclerosis International Federation (MSIF), MSSA represents South Africa on the global stage. We contribute to international efforts focused on access, brain health, research, and patient-driven innovation.

Our Values

People first
People affected by MS are at the heart of everything we do, shaping decisions and driving positive change.

Collaborative
We are strong because we work together - inspiring each other, sharing resources, ideas, and influence.

Inclusive
We are open and inclusive, embracing the richness of diversity and lived experience.

Driven
We are strategic and determined, acting with urgency to find solutions with and for people affected by MS.

A Message From Our CEO

“At MSSA, we believe in the power of knowledge, connection, and community. MS may bring challenges, but it also brings courage - and we see that courage every day in the people we support. Our role is to stand with you, to speak up for you, and to make sure you never feel invisible. We’re in this together, and together, we’re stronger.”

- Non Smit, Chief Executive Officer

Image

Register for The May 50K 2025 Today!

There are over 5,000 people in South Africa living with multiple sclerosis. Our mission is clear:

Let’s leave MS where it belongs - behind us.

Multiple Sclerosis South Africa (MSSA) has teamed up with the MS International Federation for The May 50K - a global virtual challenge to raise funds and awareness for life-changing MS research and improved access to treatment.

You can walk, run, or roll your 50 kilometres - but that’s not the only way to get involved.

This May, you can also:

Swim 50 laps in your local pool
Play 50 minutes of padel or tennis
Read 50 pages to someone in a care home
Bake and share 50 cupcakes with children in need
Knit 50 blanket squares to donate to a shelter
Plant 50 seeds and grow hope
Pick up 50 pieces of litter in your community
Create 50 handmade cards and deliver joy

Any activity that gets you moving or giving counts - as long as you’re doing it with heart.

Wherever you live, whatever your ability or fitness level, you decide when, where, and how you’ll complete your 50K - solo or as part of a virtual team with friends, family, or colleagues.

It’s all about moving for better health, stronger communities, and a world free from MS.

Register now and remember to select South Africa as your country!

MSIF (Multiple Sclerosis International Federation)

Multiple Sclerosis South Africa (MSSA) is a proud Associate Member of the Multiple Sclerosis International Federation (MSIF)

A global alliance of MS organisations committed to improving lives, advancing research, and driving change.

Through this partnership, MSSA stands united with the global MS community in powerful initiatives like The May 50K, raising vital awareness and funding for research and support services.

Together, we’re building a world free from the impact of MS.

Image
Image

We are honoured to be a full member of the World Patients Alliance (WPA), a global organization dedicated to empowering patients and amplifying their voices worldwide. Our membership with WPA aligns with our commitment to improving the lives of those affected by multiple sclerosis through advocacy, support, and education. Together with WPA, we strive to enhance patient engagement, access to care, and the development of patient-centered healthcare solutions across Africa and beyond.

Image

Support Multiple Sclerosis South Africa

Visit https://www.myschool.co.za/supporter/apply/ - choose Multiple Sclerosis SA as your beneficiary.

Image

SASSA Grant Information

In South Africa, the South African Government general disability grant is available (to South African Citizens ONLY) and information in this regard can be accessed at https://www.gov.za/services/social-benefits/disability-grant 

Image

Contact Us

National Contact (NPO 003-275)

+27 82 550 5486